The first Friday of March is Employee Appreciation Day, so in this week’s blog Rick gives us a quick insight into the fantastic member of the BM Manifesto team, the work they do on a daily basis, and a few of their quirkier features.

Mary Rose

As Head of Operations, Mary Rose’s primary function is to organise Rick wherever possible, provide the logistical mastery that the charity needs, and take the selfies.

She has organised over 30 events for BM Manifesto in her time here, including 4 conferences, 8 showcases, and 12 patient group workshops - and let’s not forget our gala dinner!

Mary Rose firmly believes that Digimon is better than Pokemon, and that wafer-thin ham in tiny packets tastes better than any other kind…



Phil looks after our E-learning Portal, helps to produce training materials for our events, and is currently developing a new set of videos to capture the stories of our patient group community.

Despite having joined us in November 2019, Phil has already taken the stage twice at BM Manifesto events, and delivered her first webinar, successfully stamping her personality on proceedings.

Phil is a budding social media influencer, running an Instagram blog on charity shop fashion.


Laura looks after BM Manifesto’s fundraising and helps out with our communication projects on the side.

In her four-and-a-bit months with BM Manifesto, Laura has written and submitted over 15 grant applications, already securing funding from three of them.

Laura is rarely seen without an item of jewellery or clothing made from up-cycled coke can ring pulls.


Well, I am the CEO of BM Manifesto – a title that someone in the small charity world told me stands for Chief Everything Officer. I look after our strategy, oversee the team and our projects, and generally fill in the gaps around the work of my fantastic team.

Since being with BM Manifesto I have given more talks than I can count in at least 8 different countries across Europe, and spoken directly to the NHS, the AMRC and the Cabinet Office.

I have a published scientific paper about dinosaurs, love Terry Pratchett’s Discworld series, and believe music peaked around 2004.

We are really lucky at BM Manifesto to have such a dedicated and fun team. We all work hard, all try and support each other wherever we can, and all enjoy getting out meeting the members of the rare disease community. As CEO, I’d just like to say a huge thank you to Mary Rose, Phil, and Laura for being fantastic to work with and amazing representatives of BM Manifesto.