News

Keep up-to-date with our latest news, including event announcements, project updates and recruitment, on this page

28 April, 2024 / BM Manifesto News

Covid-19 Emergency funding document

At BM Manifesto we are aware of the impact that Covid-19 has had on small charities and rare disease patient organisations. We have compiled this guidance to help your organisation to find funding in these difficult circumstances by utilising the emergency funding resources that have become available.
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24 April, 2024 / BM Manifesto News, Home Page

RareChat - Rare Diseases and Mental Health

RareChat is a chance to chat informally to other patient group leaders and advocates in the rare disease community. Each session will have a theme suggested by our community and a BM Manifesto team member to chair the discussion.
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22 April, 2024 / BM Manifesto News, Home Page

Join our online workshop: Setting yourself up for fundraising success

BM Manifesto is delighted to announce its first online workshop, which will provide support and guidance to rare disease patient groups looking to enhance their skills in fundraising. Taking place in interactive 90-minute sessions across three days...
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21 April, 2024 / BM Manifesto News

Leading a rare patient group e-learning guide

Following our workshop in January, the latest guide on our e-learning portal centres on 'leading a rare patient group.' The guide covers the skills needed for good leadership and how these apply to patient organisation leadership.
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17 April, 2024 / BM Manifesto News

Recruiting and managing trustees

Our webinar, taking place at 3 pm on Wednesday 22nd April, will help rare disease patient groups to establish efficient trustee boards that set their organisation up for success.
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31 March, 2024 / BM Manifesto News

Evaluating the potential of drug repurposing for rare diseases and Covid-19

At this time of international crisis, a large number of companies and researchers are turning to drug repurposing as a potential solution – but what is repurposing and why is it such an attractive route for drug development at this time?
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17 March, 2024 / BM Manifesto News

BM Manifesto Office Closed - but work continues!

In light of the UK government's advice regarding the Covid-19 outbreak, announced on the evening of 16th March, the BM Manifesto office has now closed and the team are all working from home.
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10 March, 2024 / BM Manifesto News

BM Manifesto’s response to Coronavirus

With the recent developments regarding Covid-19 (Coronavirus), we have been considering BM Manifesto's response to the outbreak.
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2 March, 2024 / BM Manifesto News

Student Voice Prize Winners Published

The winners of the 2019 Student Voice Prize have now been published in celebration of Rare Disease Day 2024. You can find links to all of the pieces here.
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11 February, 2024 / BM Manifesto News

Developing medical guidelines portal guide release

Announcing the release of a new learning guide on our online portal. The 'Developing medical guidelines' guide focuses on assessing your patient groups suitability for medical guidelines and walks through the different steps of developing medical guidelines alongside NICE guidance. Check it out if you are interested in understanding what medical guidelines do, how they can benefit your patient population and how you can create them.
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